The CGD Café

Hi everybody.  I have not posted or read anything for some time.  My son Gord is now 18 years old and doing very well.  We have recently been in contact with  the NIH and they have offered a clinical trial for us to participate in.  Has anyone had much experience with this situation?  Gord is planning on attending University in the fall and we were wondering how disruptive vs. helpful this might be?  Thanks for any input.  Kathy W.