Please Pray for Sean Van Ness~attached is an email from Sue | The CGD Café

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User login Username: * Password: * Create new account Request new password Navigation forums blogs CGD Guidebook recent posts Active forum topics Boy in Michigan needs our help! Large Stomach Photo of CGD patients needed right now Lupus-like symptoms in carriers Honey more Recent blog posts Ben - Healthy and Smiling Please Pray for Sean Van Ness~attached is an email from Sue Domenic An Update on Ben Fluid around Mason's heart having a baby w/o cgd bone marrow transplant Having Kids New Member IDF Conference more Who's online There are currently 0 users and 0 guests online. Feeds your need Direct RSS link	Please Pray for Sean Van Ness~attached is an email from Sue Okay people~ Let's get our praying and positive thoughts going for SEan Van Ness. Today I received this email from Sue. Please contact her with your thoughts and love@ purpleloversue@yahoo.com Hi everyone. I did go home last evening with the girls and attended one of the benefits in Spencer at the Grange. Lordy, Lordy! Theresa, Kathy, Lauren & Sondra...you guys did an awesome job pulling this together in such a short time period especially! I am so impressed and so thankful! To all of you who helped in whatever way, thank you so much. It was great to see everyone also--very bittersweet! So to give you an update...I got back with the girls early this afternoon and immediately noticed that Sean's heartrate had dropped significantly. So after a meeting with the doctors, Sean's condition has worsened and unless there is an act of God (aka MIRACLE), he is not expected to live. The time frame is not known...he still has a fight but it is diminishing. Sean is still responding heartwise...his heartrate goes up when we talk. No drastic measures will be used at this point, but he will be kept comfortable at all times. I can't think of anything more to say except keep praying and thank you for everything. I will be in touch. Love, Sue Submitted by LaDonnaKaye on Sat, 2008-04-05 15:36. LaDonnaKaye's blog \| login or register to post comments My Prayers Submitted by Bensmom on Sat, 2008-06-28 12:28. I just read that he passed. My heart is so heavy today. My prayers will stay with the family. I'm so very sorry for the pain you all must be feeling. Connie login or register to post comments Sean Van Ness Submitted by watergirl6 on Wed, 2008-04-23 21:03. I don't know if any of you have been following Sean's caring bridge site: http://www.caringbridge.org/visit/seanvanness, but Sue posted on the 19th that Sean passed away on April 16th. Sue, my thoughts and prayers are with you and your family. I am so sorry for your loss. Gina login or register to post comments Sean Submitted by Bensmom on Sat, 2008-04-12 19:16. I will keep Sean and the family in my prayers. Miracles do happen. Love and Friendship, Connie One day at a time.... and smile. :) login or register to post comments FYI Submitted by watergirl6 on Mon, 2008-04-07 20:13. They also have a caring bridge site up for him. You can go to www.caringbridge.org and enter in his name to find the page. Sue, you and yours are in my prayers. ~Gina login or register to post comments Sean Van Ness update Submitted by Claytons Mommy on Wed, 2008-04-09 18:11. In appreciation of each and every healthy day, Marty Cowan (Clayton's Mommy) login or register to post comments