mattjkemm's blog

Having Kids

I was just wondering if anyone knows the chances of me having a child with CGD. I know they are probably pretty high since I have CGD and my mom is a carrier. Me and my fiance would like to have kids some day but I really don't wanna have to put a kid through the things I've been through if I can help it. If anyone has asked a doctor about this and knows the odds please let me know. Thanks

Submitted by mattjkemm on Sat, 2007-09-08 22:21. 4 comments

New Member

My name is Matt Kemmerer. I am 24 yrs old and live in Fairfax, IA. I was diagnosed with X linked at 6 months old. I have recieved all of my treatment at the University of Iowa . It's been great there. I have gone through quite a bit over the years so if anyone has questions about procedures or infections I've prolly had it done so ask me anything. I have had 3 lung surgeries including a resection of my upper and middle lobes of my right lung.I have had your typical CGD infections through the years (pnuemonia's, aspergilious,solmenella) but have also had Nocardia twice. This was nasty and it resulted in surgery both times including my resection. Also a big important thing I do recieve Social Security Disability. It took me years and years of fighting through paperwork and legal junk but I went to court in June 06 and won. It's nice because I cant work full time because I would be way to tired and it helps pay bills but the big plus is medical coverage. We all know how expensive drugs are and this helps a ton. Thanks for reading and feel free to ask anything.

Submitted by mattjkemm on Mon, 2007-09-03 16:10. read more | 11 comments
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