The CGD Café

Hello, I don't write in very often but i do visit the site atleast once a week.Connie it is great to read how Ben is doing. My son Domenic is turning 6 this month and also started kindergarden this year. He has been doing so good a few sores around his bum has been the only issues and a little more predisone has helped that. He has scheduled appointment  coming up this month at the  NIH his third trip check up only.I can say he is definately a very active boy as i write he is brawling with his 4 year old sister who is allready taller than him and out weighs him.We still have no luck trying to get the town to remove mulch in our local playground and his elementry school won't budge on their playground in the school yard either.He brings his own toys to school and plays in a seperate paved area and all his friends join him.  Zach and Jaxsen you guys are allways on my mind and i pray that you have a speedy smooth recovery.I'll write again soon.