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DomenicHello, I don't write in very often but i do visit the site atleast once a week.Connie it is great to read how Ben is doing. My son Domenic is turning 6 this month and also started kindergarden this year. He has been doing so good a few sores around his bum has been the only issues and a little more predisone has helped that. He has scheduled appointment coming up this month at the NIH his third trip check up only.I can say he is definately a very active boy as i write he is brawling with his 4 year old sister who is allready taller than him and out weighs him.We still have no luck trying to get the town to remove mulch in our local playground and his elementry school won't budge on their playground in the school yard either.He brings his own toys to school and plays in a seperate paved area and all his friends join him. Zach and Jaxsen you guys are allways on my mind and i pray that you have a speedy smooth recovery.I'll write again soon.
Submitted by mcenci on Fri, 2008-03-07 17:56. mcenci's blog | login or register to post comments
 Doesn't it figure I write in, we visit NIH, we come home then three weeks later he is in the hospital going on one week know with a pnuemonia. Well hopefully he will be home soon.We did determine he is allergic to bactrim bad news but he is still a very happy energic kid .  Dear Domenic My name is Shannen and i live in Australia, I was also allergic to bactrim but I went through a desensitization to it and now I have it every day without a problem. I am 15 now and have been on it for about a year and i think it has made a difference. I also was allergic to bactrim and went through the desensitization process. I also have been on bactrim for about a year. I am 50 and still kicking!(today anyway) Karen |
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It's great to hear that Domenic is doing so well. How blessed we are!!!
Love and Friendship,
Connie
One day at a time.... and smile. :)