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User login Username: * Password: * Create new account Request new password Navigation forums blogs CGD Guidebook recent posts Active forum topics IDF Conference June 23 - 25, 2011 Prayers for the Kirk Family Pray for Erik Hurley Social Security Disability cgd carriers more Recent blog posts Unrelated umbilcal cord blood transplant BMT with Unrelated Donor Have a Happy New Year! Cellulitis Bone Marrow Transplant Journey Make A Wish Make A Wish cgd carriers cgd carriers Jaden's transplant blog more Who's online There are currently 0 users and 1 guest online. Feeds your need Direct RSS link	remicade Hello All The Nih is starting a remicade protocol for 25 patients with Cgd that have IBD symptoms. We are considering this due to Domenic's constant battle with his bowels. In the past we did go through 2 rounds of remicade but Domenic picked up an infection so we had to stop, but I think its time to try again.Has anyone else been contacted please respond. Thank You Mark Submitted by mcenci on Fri, 2009-02-06 08:54. mcenci's blog \| login or register to post comments Remicade Submitted by jheape on Fri, 2009-03-27 03:54. Mark, I don't read this board too often but ran across your Remicade post. Thought I'd let you know I was at NIH week of March 16 (first time in 3 years). Although I don't have any bowel problems and do have CGD, they asked me to undergo a colonoscopy for the Remicade research. I'm at that age when the colonoscopy is a necessary thing. They took 44 biopsies from my colon. My colon was given a clean bill of health otherwise. I hope your little guy is getting on ok. Joey login or register to post comments mcenci Submitted by mcenci on Fri, 2009-02-06 09:50. mcenci login or register to post comments