The CGD Café

Our son, Lukas was diagnosed with CGD when he was 2 years old.  He was hospitalized at that time, but since then has not had any complications.  We've met with doctors every few years since then and discussed the bone marrow transplant option.  Through genetics testing, he has X-linked CGD and it has been recommended that he (now age 10) have a bone marrow transplant.  We have done tons of research and have made the decision to have his transplant in Cincinnati, Ohio.  Due to his current health condition, no major organ damage, and his age this is the time to do it.  An 8/8 unrelated donor has been identified and we will proceed with the BMT at the end of February.  We just completed his pre-evaluation testing and all looks good.  If interested in following Lukas' journey to a cure his website is http://www.caringbridge.org/visit/lukasn.  Please keep our family and the donor in your prayers.