The CGD Café

Hi to all who may concerned about CGD.

My husband Kim and I have 2 sons and they both have cgd.

My eldest son is Hyun, he is 9 years  and my second son Joon is 20months old.

I 've known the old cafe and have posted some questions there.

You guys sencerely answered . thanks a lot. That was great help and support to us in Korea.

Well... Let me talk about our sons recent life with cgd.

Hyun is 3rd grade  now .His study is getting very tough and expecting it's going to be worse a lot.

(You know, Korean students are  studying really really hard.)

But, despite the concern for him, he is doing really fine.

He has very small skin infections on his cheek, but it'll be fine in several days I presume.

He is not a good eater(I don't know whther it is right expression or not. help me!)

I mean  he always has had eating problem because of  bad appetite.

We are struggling with this problem . So he is much shorter than average height of his age.

Joon had pnuemonia when he was 2weeks old.

It had started with coughing and fever. We thought that was just a cold. Because our paid nanny had bathed him very cold atmosphere in the bathroom.

For God's sake, he is only 2weeks old  at that time, she should sorry for that!

Anyway, Joon was hospitalized for that, and we've found out he got CGD like his brother

My husband and I were really disappointed and lost all hope at that moment.

But we've regained our strength for our beautiful sons.

They are really adorable .

Joon had another hopitalization but he is fine after all.

THANK GOD FOR EVERYTHING!!

It's already long post so I am going to stop now.

Well...then,, Take care of yourself everybody in here.