Sue V's blog

Prayers needed!

I am pasting a message from Dawn Adams regarding Jax, one of her sons who went through the BMT a year ago.  The 2 boys just had checkups within the past week and then Jax starting seizing at dinner.  Please reach out to show support and keep Jax and the family in your thoughts and prayers!

~Sue Van Ness

http://www.caringbridge.org/visit/zachandjaxsen

 

&q

Submitted by Sue V on Fri, 2009-01-30 06:32. read more | 2 comments

Bone Marrow Transplants

I am hoping that members of our CGD family will reach out to 2 families that I have grown close to via the internet (Facebook in particular)...the Ahad's in England and the Delgado's from Arizona.  Kelly & Andy Ahad have a little boy, Tyler, who went through the BMT and experienced GVHD and may need a liver transplant as a result.  Kelly also has another little boy, Aiden, who has CGD, and they plan on pursuing the BMT with him as well at some point.  To read about them and show your support, go to www.facebook.com and type in " Living With Chronic Granulomatous Disorder CGD". 

Submitted by Sue V on Wed, 2009-01-07 07:43. read more | 3 comments
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