Bone Marrow Transplants

I am hoping that members of our CGD family will reach out to 2 families that I have grown close to via the internet (Facebook in particular)...the Ahad's in England and the Delgado's from Arizona.  Kelly & Andy Ahad have a little boy, Tyler, who went through the BMT and experienced GVHD and may need a liver transplant as a result.  Kelly also has another little boy, Aiden, who has CGD, and they plan on pursuing the BMT with him as well at some point.  To read about them and show your support, go to www.facebook.com and type in " Living With Chronic Granulomatous Disorder CGD". 

The Delagado's live in Arizona and their son, Alex, went through the BMT yesterday in LA.  His sister, Sabrina, is his donor, so Laura & Jerry D. have 2 children in the hospital...one who donated and one received.  I can't imagine the emotions!  Their other daughter, Karina, is being a very supportive, positive, understanding young woman from what I have read in Jerry's blogs.  To read about them and show your support, please visit their site at  http://web.me.com/jerrydelgado/Site/Welcome.html

I posted how we are doing under the Happy Holidays blog, but I would like to thank all of you for showing your support during our difficult (to say the least) year and the loss of Sean.

Happy New Year,

Sue V.

Submitted by Sue V on Wed, 2009-01-07 07:43. Sue V's blog | login or register to post comments
Thanks, Sue for the Facebook
kiron's picture
Submitted by kiron on Sun, 2009-04-26 23:08.

Thanks, Sue for the Facebook info. I've joined in hopes of getting more feedback from others that have undergone bmt. There are so many questions and concerns...

Kiron


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Will do!
Bensmom's picture
Submitted by Bensmom on Sun, 2009-01-11 11:53.

Thanks for the heads up on these two families.  I'll definitely visit both sites.  Support is so important.

 Thinking of you also!

Connie

One day at a time.... and smile. :)

 ******** I just tried to go to the facebook site but I couldn't as I don't have a facebook.  Is there another way to contact the family?  Thanks! :)


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Facebook
Sue V's picture
Submitted by Sue V on Fri, 2009-01-30 08:13.

Hi there.  Unfortunately you have to sign up for Facebook.  It actually is a lot of fun...a great way to reconnect with friends!  Also is another great support system for CGD people...there are several CGD groups on there. 

Sue Van Ness


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