The CGD Café

My son, Jordan age 13 had his bone marrow transplant on Friday, October 16, 2009.  He is doing wonderful and we are waiting for engraftment any day.  Please feel free to follow his progress at www.caringbridge.org/visit/jordanrudel

His donor was  a perfect 10/10 unrelated match.  We have waited 2 years since we started this journey.  Texas Children's hospital has done 13 bmt's for CGD....  all cured.... Praise God.

has anyone wanting to have a baby investigated this institute ? please respond... 

http://www.genesisgenetics.org/pages/services.html

 The scientists and doctors at Genesis Genetics, headed by Mark Hughes, MD, PhD, performed the world's first Preimplantation Genetics Diagnosis (PGD). Since that time we have been helping couples for problems with more genes, causing more inherited illness than anyone else in the world.

I have CGD and so does my 11 year old son Jordan. We went to have HLA typing done for a bone marrow transplant 1 1/2 weeks ago. Jordan does not have any full siblings so hopefully there will be a match in the bone marrow bank. We were told at the hospital where he will have the BMT that there were eight boys that have had a bone marrow transplant 4 with unrelated donors all but one survived and are all healthy and living without cdg(praise GOD). The one that died was very sick with cgd related infictions before they even started the BMT, his chances for survival were not good to begin with.