The CGD Café

The conference in St. Louis is getting close.  Anyone else out there going?  This will be my first time.  I hope to meet some of you when I am there.

Vickie

I was recently (December) diagnosed with CGD.  It has only taken 57 years for them to find out what is wrong with me.  The various CGD symptoms mask themselves as to many other things; i.e., allergies, childhood ailments, etc.  Today I had a bone scan and my GYN has determined it is severe osteoporosis.  Can this bone loss be from CGD?  I mentioned my newly diagnosed CGD to her; but was met with a blank look. Since doctors don't know what CGD is they are unable to relate it to whatever the current ailment is.  How can you really know  the actual cause of any medical problem you ha