GM-CSF for CGD Colitis?

kiron's picture

My son, now 4, was diagnosed with CGD related Colitis over the summer. He has been on Prednosolone for a while now (30mg). His GI feels we need to taper off the Pred and ramp up on GM-CSF. Has anyone heard of this tx? what is the success rate? side effects? The dr. tells me he has had great success with getting the Colitis in remission with this option.

 We are supposed to start the therapy next week. It will consist of daily injections for the first 2 months and then go to injections 3X/week (similar to acctimune).

 Any info would be much appreciated. I'm very nervous about putting my little guy through this, but if it increases his chances of being healthy, i'm willing to try anything.

Kiron

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Submitted by kiron on Wed, 2007-10-10 00:53. categories [ ] login or register to post comments
GM-CSF
Sue V's picture
Submitted by Sue V on Sat, 2008-02-23 07:37.

My son is in the hospital for ulcerative colitis and I asked about the GM-CSF that you had mentioned.  I am anxious to hear if you started it and how it is going, the length of time it takes to "kick in", etc.  The doctor here in NYS said it is experimental and he doesn't know of any trials going on. Any input would be most appreciated.

Sue Van Ness


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Gm-CSF for CGD Colitis?
Mary Hurley's picture
Submitted by Mary Hurley on Fri, 2008-02-08 22:44.

Hi Kiron,

I hope that your son is doing well and that his colitis is gone. Quite a few CGD patients have tried Gm-CSF for colitis and I'm curious to know if it has helped Jaden? How is he handling the injections?

Please let us know how he's doing. I hope he's doing fine.

Mary Hurley


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