The CGD Café

Many of you that have gone to NIH knew Terrence Bateman. His mother, Melody Roy, sent his eulogy to share with others. Mary Hurley

10/14/07 – please share with our CGD family, Melody Roy, mother

Dear CGD extended family,

Hello family,

On 7-26-07 Terence L. Bateman Jr., age 31, passed away at the National Institutes of Health in Bethesda, Maryland.

Te’s journey began in spring 2007. Donor stem cell transplant approximately the first week of July 2007. A new diagnosis cured CGD x-linked. The donor stem cell transplant was successful!

In the future, CGD children, prior to organ damage, can receive the sibling or donor stem cell transplant. Te, made the decision to have the donor stem cell transplant in poor health. Te had kidney & liver disease. Prior to the transplant Te made the decision, if his kidneys shut down, he would not continue long term on kidney dialysis.

CGD did not define the person Te was. Eulogy:

Terry, God’s special gift! To be your mother, with that gift came such emotion filling my heart forever. Terry and I, we, us, together, we held each others hand & kept moving forward, living life.

Your accomplishments and goals taught me patience, unconditional love, to give support and encouragement. You kept me, moving you, forward as you had such determination to succeed. I have always been so proud of you and the person I admired most in my life was you.

Your playfulness, singing, dancing, playing jokes, humor, laughter, and smiles gave me the insight to never miss a moment with you. At the same moment in my day, my heart danced with you.

You had such strength and determination that made it possible for you to live day to day with such adversities. Just to reflect on this gave me strength and determination in my own personal life. You & I focused on comfort, feeling good, a happy loving life with experiences with family and friends.

During your times of illness, treatments, disappointments, frustration and sadness, we cried together! There were so many interruptions, but we always kept moving forward with affection, hugs, kisses, and those words “I love you”. I always felt so special from you, as your mother.

All your friends were treated with the utmost respect and kindness. You brought such comfort to all the children in the hospital and you taught them to not fear getting well. You are now with Bruce, James, Edward, Matt, Julie, Dallas, Kelsey and so many others. Every person you have touched with such a wonderful friendship.

Te, I loved into the living world. I loved you through out all the years in the living world. Then, I loved you right out of the living world into God’s arms. Now I love you in eternal life. You will be the angel spreading emotion and love into hearts. I will love and miss you until we are together again.

Te’s death was the most loving experience in my life. It was so beautiful. Te opened his eyes, I said, Te, “I love you”. Soon you will have to leave me & go into God’s arms. He took his last breath and left to go to eternal life. God was so merciful. There was no pain or suffering. I loved him right out of the living world. There will be no pain in death – just loving and missing him.

Melody Roy, mother